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MVSN was created in 2015 by a team of patient representatives, two Consultant Gynaecologists and a specialist Nurse. The group was created to meet the needs of women with vulval pain issues in the North West of England. It was recognised that there was a lack of face to face support for what can be a challenging and isolating condition.
The group aims to provide a forum for women with vulval pain conditions to share helpful advice, enjoy informative talks from a range of speakers and to create a local network for patients and professionals to share best practice.
The MVSN group meets once a quarter in the 'Parent Craft' room located at St Mary's Hospital Manchester. Each session provides a small forum where patients can come together in a mutually supportive environment. At each session, we facilitate a guest speaker who specialises in their field of expertise in relation to Vulval health. The speakers have so far included a specialist pelvic physiotherapist, a Consultant Anaesthetist and specialist in pain management, a Hypnotherapist and a Nutritionist. Heather is a strong advocate of the MVSN group and as well as providing her professional skills, also chairs and facilitates this group.
What is the Lichen Sclerosus Priority Setting Partnership?
There is a need for further research into lichen sclerosus. This project has been set up to identify and prioritise research questions that are of importance to people affected by lichen sclerosus and health professionals involved in their care.
Who should take part?
Who is running the survey?
The Lichen Sclerosus Priority Setting Partnership is an independent group of patients and health professionals. The project is funded by the British Society for the Study of Vulval Disease and overseen by the James Lind Alliance.
Heather Coppard - MVSN Chair & Hypnotherapist
Ursula Winters - Consultant in Obstetrics & Gynaecology
Dr Kate Parker - Consultant Obstetrician and Gynaecologist
Sarah Benjamins - Student Nutritionist
** A special thanks to St Mary's Hospital for the supply of the meeting venue.
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